Kids with MD get their care in one visit
Ever since 9-year-old Katie was diagnosed with spinal muscular atrophy at 18 months, her parents have made sacrifices to get her the best care. They got her a CPAP machine to treat her sleep apnea and a power wheelchair. They've rushed Katie to the emergency room, sat by her after multiple surgeries, and monitored her for pneumonia.
When a new Pediatric Muscular Dystrophy Program opened in New Haven last year, it cut down on time and stress related to doctor visits, says Katie's father, who drives from Mystic for appointments. "The doctors all pretty much work together, so we can set up appointments for the same day," he says.